Things That Really Bug Me About Huntingtons
by Lou Wilkinson
1949 - 2004

All the door latches are at the same height as the corners of anything I
wear that can get caught

I can't seem to get out of bed without hitting my shins

As wide as the doors are, I can't get through them without smashing my
shoulders!

My tongue never stops moving, even on those rare occasions when I'm not
talking

It's hard enough to talk even with my teeth in.

My dog stays away from me, wait a minute so do people

I should get isolation pay when no one else is around.

My left knee goes West when I'm going East.

It takes me 3 separate trips to find my smokes and my glasses to go to
the bathroom/reading room.

The bathroom has to be the reading room because of the cigarette burns no
sense putting down new tiles yet.

Laughing at jokes 2 minutes after the punchline when everyone is onto
something else.

Putting on panty hose is a circus act worse than the high wire and no net.

 I believe in awareness but what do I say in a social setting
"Ohhhh it's nothing........"
that's if I like the person, if not they get the lowdown,   hehehe

My throat actually sticks together - that's scary enough but running for
a sink too is total madness.

It's easier to just one paper towel instead of handfuls of toilet tissue
that falls apart anyway.  But get the soft  one - wouldn't want to chafe
anything!

Vacuuming with a vacuflo is more dangerous than cuddling an anachondra.

Nobody takes me seriously because of my bad memory.

I spend half my time losing stuff and half my time looking for them.  Every
time I put something down I can't remember where it is, aaarrgggghhhhh!!!!!
 

Okay let's be fair
The Good Stuff About Huntingtons
can't think of any... just kidding.
 

People push you around but in a wheelchair

People actually get out of the way for a wheelchair - making eye contact
on this one really works.

You get a disabled sticker for the car so you get the best spots and
even the women slow down and let you nudge in the lane - eye contact is
definitely an asset

People open doors for you - well, most of the time.

Went to a party on Tuesday with my old staff, they couldn't stop waiting
on me - I felt like the queen

If I keep my mouth shut, everyone takes me seriously.

I found a whole bunch of people on the internet who understand what I' m
like but what do they know, most of then don't have HD and the others
can't type, hehehe not true

People don't get mad when you forget to call them or forget appointments etc.

People actually suggest that I have a nap during the day, works for me.

I finally got my husband back for all those years he didn't want to
dance, now I just dance around him!

I don't have to cook much - only had to burn a few things before he got the hint, heheh

My sons think I'm the greatest and show me a lot of affection even with
their friend are here.


Lou passed away on Sunday February 8th 2004
Although I never met Lou in person, I am glad that we were often in contact on the internet. I will always be thankfully for the help she gave to me and my family. She will be missed by all her friends

Poems by Lou Wilkinson
 Life is Changing
 Serenity - Where Are You